Hi again everyone!! I went to see Addy today and when I got there I found out she is on ET/CPAP which is still the tube but it is not breathing for her and she is only on 21% oxygen which is what we breath!! So she is doing so great!! I'm betting it was from me holding her!! She was on 20bpm (Breaths Per Minute) and 25% oxygen and her SATs were all over the place.
I just don't know any other reason she would be doing so well!! She hasn't had a change in awhile and didn't seem like anything was gonna happen! It was like day and night overnight!! Well I got to hold her again today!! So I guess i'll be able to hold her once a day again!!
So now that she is 4 pounds 4 ounces they can do a test on her to see what is affecting her breathing!! I hope they do it Monday before I leave to go back home for a little while. The dr. said it is either bad lungs, Bronchomalasia(sp), or Tracheamalasia(sp). I hope its bad lungs since they can just give her steroids but if it is either one of the other two I hope it would be bronchomalasia instead of tracheamalasia. If its Bronchomalasia she will come home on CPAP. If its Tracheamalasia then she well have to have a trach put in if her trachea doesn't mature fast enough and harden. With the trachea will come a feeding tube or gtube with a button .
So I hope its one of the others!! Thanks again!! Your words of encouragement help me get through everyday!!
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