Well Addy's new and unimproved condition is that she has Methicillin Resistant Staph Aureus(MRSA). Its pretty much a staph infection. She is not symptomatic but has tested positive from her nose.
So she is now in her own room and will be there until she leaves. It's kinda cool that she has her own room but it sucks now that I have to where a gown and gloves if I want to touch her!! OMG how does that even feel like you are touching your baby?? I won't be able to feel her skin. This just sucks. The baby that was across from her also has it and is also in containment in the room next to her.
So she is 3 pounds 14 ounces now and gaining. Her feedings are at 7cc/hr continuous and they are having to put her OJ tube further down her intestines and put in another tube to drain the bile out of her stomach cause for some reason it is coming back up and they said the only way that happens is if her intestines is blocked.
They already changed the tube from 8 french which was huge to 6 french. They did have her on the NG tube but put her on the OJ tube cause she was having reflux.
As of right now we are waiting for her to go up to 2 kilo which is 4 pounds 4 ounces so they can check her trachea. They said the breathing problem is either bad lungs which I am hoping what its is since it can be treated with steroids or it is something called either Bronchomalasia(sp) or Tracheamalsia(sp). If it is Bronchomalasia then she will only have to be on C-PAP maybe even when she comes home because she'll need extra pressure so keep open the smaller tubes that brach out open for her to breath. If it is Tracheamalsia then she will require a trach to be put in for her to breath until the trachea matures and gets hard so it does not collapse when she breathes.
So it is a wait and see game right now with her. I am just glad that I know what is going on and what I am looking at dealing with. I have been told that she can't go to daycare because she can only be around one other kid at a time when she comes home which I am very relieved with!! My fiance wanted me to go back to work but I didn't. She also has to be the only baby that the person is taking care of. So I won't be able to work for the first 6 mths to year which is great!! I won't miss anything!! So I have also been told that she will have at least 6 dr.s!!! OMG I will be so busy with her lol
Well that's all I have right now.. Thanks everyone for checking on her and asking how she is!! It's great to know that it's not just me that is caring about her!!
Sunday, February 17, 2008
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