Thursday, March 6, 2008

Addy Update!! 3/6/08

So yesterday I found out that may have down syndrome or something else. Her craniofacial plastic surgeon was the one that noticed something because of her eyes. Then more doctors looked at her and they got the genetic specialist to look at her. Not sure what that Dr. said yet but they are drawing the blood today to run the tests. If they send the blood to California then it will take about two weeks to get the results back in. If they do it here it will take 48 hrs. So I'm hoping they do it here. I just wanna know now. I noticed it the day before the Dr. said something but just pushed it aside thinking it wasn't possible. Addy is doing great though!! She acts like a "normal" baby so I have no worries.. All I can do is pray for her!! Please keep her in your prayers!! I go see her Dr. for her cleft lip and palate today. Maybe he can tell me a little more about what he saw!!

Ok so I have been trying to take a nap and I keep getting calls from a company asking if I can go see how to work an apnea monitor and that they say I need to go Tuesday since she is getting discharged on Wednesday!! So finally after the 3rd call I get out of bed and its too late to call the NICU cause its shift change. So I wait for 4pm and call. I found out that she could be coming home on Wednesday as long as her swallow study comes out ok!! If not then we will probably take her home Friday!! Either way she is coming home next week!! I so can't wait!!

We take a CPR class on Monday. Learn how to work the apnea monitor on Tuesday. She has the swallow study tomorrow. We're gonna room in with her anywhere from Tuesday to Thursday to get used to being with her!! So she is practically home now!! This is just great!! She will be coming home on the apnea monitor and oxygen just while she is feeding!! We'll get a nurse that comes to the house 2 times out of the week to help us.. I'm gonna go nuts trying to keep the house clean. lol

I also found out that her results for the genetics test will come back in 48 hrs!! The genetic specialist said that some of the measurements were off but its nothing to worry about but he would do the tests anyway just to be safe!! Well I'll keep you guys posted as she gets closer to coming home!!

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