Addy is doing alright.. She failed her swallow study last friday so they took her off of all feedings.. But now they are feeding her twice a day and she is feeding without us squeezing the bottle for her!! She just took 30cc on her own and she gets 40 per feeding so she is doing well!! Her next study is on March 20th.. If she fails that one too then we may be talking g-tube which the dr. we have now doesn’t like that at all so she will do anything to help us not go that route. She weighs 6 pounds 9.5 ounces 19 inches long and is almost out of preemie clothing now!! She is doing great with her oxygen levels and no longer needs it while feeding!! So when she does come home it wil be with no oxygen and no monitor!! Yah Addy!! Well I wish I could put up pictures but my laptop is not working right now so I can’t post them.. But as soon as I can I will!!
She has been scheduled for her first surgery with Dr. Wang here in San Antonio on May 16th!! Yes that soon!! His work is just awesome and he does minimal surgeries!! She will have her lip surgery, then her palate surgery at 6-18 monthes, and at 4-5 years before she starts school they touch up the lip and nose if it is needed. At around 9-10 they take bone from the hip and use it for the gumline if it is needed. All in all I really like how he does minimal surgeries.. I was looking at the shriners website for the cleft lip and palate and noticed that they do a LOT of surgeries all the way up until they are in they’re teens. I have not seen any pictures though so i’m not sure what their work is like. I am still gonna sign her up for them though just in case something happens and we end up without insurance.. They also help later on with braces and stuff so that will be a big help. Especially since her insurance is taking a big hit. I’m scared it may get maxed out.. Well that’s all for today!! Talk to you guys later!!
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